$1.4M+ AUD raised
4.9“Excellent”Lee shared the story of four-year-old Rick and his mum, Vanessa, so their fight for treatment, comfort and more time together could reach a community ready to help.
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Rick’s Story · Sydney, Australia
4 min readRick was diagnosed with Infantile Tay-Sachs disease at 18 months old. Vanessa was told he may have only two to four years to live.
Rick is now four. Vanessa has continued searching for ways to improve his comfort and quality of life, while caring for him and working full time as a single mum.
01 · Vanessa Never Stopped Fighting
Earlier this year, Vanessa took Rick to Florence for his first cycle of REAC treatment. Since then, she says he has become stronger, more responsive and more comfortable.
After years of hospital admissions and seizures, the changes have given their family something precious: hope.
For Vanessa, this has always been about giving Rick more comfort, dignity and time.
02 · The Next Treatment Could Not Wait
Rick needed further treatment cycles in Italy. The cost included treatment, medical travel, accommodation, specialised equipment and the daily care needed throughout the journey.
Lee shared their story so Vanessa would not have to carry that weight alone.
03 · The Community Responded
Tens of thousands of people responded to Rick and Vanessa’s story. The direct fundraiser is organised by Lee for Vanessa, who is the named beneficiary.
The fundraiser states that the money supports Rick’s treatment, medical travel, accommodation, specialised equipment and daily care costs.
Direct donations support Rick and Vanessa through their GoFundMe.
When you shop Butterfly, you don’t just help fund 20 meals per product. You give us the power to find more people like Rick, meet them face to face and help their stories reach a community ready to care.
1,700,000+ meals funded
Shopping Butterfly helps fund the equivalent of 20 meals per product and makes the giving trips and storytelling that help people like Rick possible.
Rick’s fundraiser remains separate, so anyone who wants to offer direct support can donate through the GoFundMe linked above.
Real customer reviews across Butterfly jewelry and apparel.
Rick’s fundraiser and Butterfly purchases are two separate ways to act.
No. Product sales are not direct donations to Rick. Shopping Butterfly helps fund 20 meals per product and powers the giving trips and storytelling that help these stories reach more people. Direct support for Rick is made through the GoFundMe linked on this page.
The fundraiser states that the money supports Rick’s treatment, medical travel, flights, accommodation, specialised equipment and daily care costs.
Every product purchased helps fund the equivalent of 20 meals through Butterfly's giving partners. Purchases also help make giving trips possible, so Butterfly can meet people, share their stories and help direct fundraisers reach more people.
Yes. Eligible items can be returned within 30 days. Read the return policy.
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